Report the death of someone with a learning disability or an autistic person

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Anyone can use this online form to report the death of someone who was aged 18 or over and who:

• had a clinical diagnosis of autism, or
• had a learning disability

To report the death of a child or young person under 18 years of age please visit Child Death Review.

The information you provide when you report a death to LeDeR will be used by your local Integrated Care System to carry out Learning from Lives and Deaths, people with a learning disability and autistic people (LeDeR) review to better understand the needs of people with a learning disability or autistic people and to improve future services.

The form should take around 15 minutes to complete.

The form will ask you to provide details about:

• The person who has died
• The circumstances of the death
• Your relationship to the person who has died
• Your contact details

Please give as much information as you can in the notification form, this will help us to identify the person who has died.

National Data Opt Out

The national data opt-out is a service that allows patients to opt out of their confidential patient information being used for research and planning.

LeDeR has been granted an exemption from the National Data Opt-Out by the Health Research Authority Confidentiality Advisory Group to the Secretary of State. This means that even if a person had opted out via the National Data Opt-Out before their death, their health and social care data can still be used for the purpose of a LeDeR review.